Back from the brink.
That’s what I am.
I’ve had hypercalcemia since April. If you look it up, you find this fun little nugget…
“Eighty percent of patients will die within a year, and there is a median survival of 3 to 4 months. The main pathogenesis of hypercalcemia in malignancy is increased osteoclastic bone resorption, which can occur with or without bone metastases.”
Once for a whole week with over thirty injections into my stomach.
Had my oncologist tell me she never had anyone as bad as me that survived.
Paid out of pocket for a medicine that paper pushers in an insurance company deemed wasn’t approvable so I took it off label… and spent a crapload of money during a pandemic on it.
My nurse angel walked in and said she was sorry she had to stick me in the hand because the port wasn’t working fast enough for us, but it was worth it because my calcium was 9.8. The lowest it’s been in months. It didn’t even have the “H” next to it which was essential a middle finger to me saying “tick tock” on my hypercalcemia clock.
The entire ward of nurses became excited when they heard. I knew from their faces and non answers the past few months when I begged for stories of people who lived through this that they didn’t have any.
Now they do. We even danced a dance I do with my kindergarten.
My oncologist does too.
Even the oncological pharmacist came out and said their office cheered when they saw the calcium come back.
Yes, I still got hammered with the heavy chemo yesterday. We are still waiting for further biopsy results to confirm the third line of cancer, which will change the therapy I receive in two weeks. It will be a hard few days, and I was up all night from the steroids.
I did some school work and looked at other district’s reopening plan. It’s an impossible task. But teachers always seems to do the impossible, dont we?
I also messaged the leader of our sewing mask circle for the kids in our district. We’ve got people donating money and masks, and people donating time to sew masks. Our goal is to have enough cloth masks for all the students in the district, and maybe even two.if you can’t sew, you can donate money or time by cutting fabric and prepping for the sewers.
I also am in a group of parents trying to help the students in our district. Our budget failed again. The only one in Long Island. For each one of the angry toxic people, we’ve found two who want to help build up constructively instead of just tear down.
My daughter is a senior. Yes, covid might take it all away this year for her. She is a three varsity sport athlete, musician, in theatre, and this year had a packed schedule of electives she will need to help her with college. We are relying on scholarships because all of our money is in cancer care. Other kids in other districts should they get some sort of a year will get a leg up over the kids in our district now when it comes to scholarships. The inequity hammer keeps hitting our kids.
Yet there was still hope she could salvage some of her year. If the virus receded spring was our beacon of light. The community voted it down and took it away. For the children being tossed about in the waves, the lighthouse light went dark. My heart is broken for her. She has dealt with a mom with stage four cancer, her junior year cut short, and now her senior year destroyed. Thank God for the NJROTC. They are funded by the Navy, and she was named Commanding Officer. She has already zoomed with her instructors, has a weeklong virtual planning session with units all over the eastern seaboard, and is gearing up to give kids who had to much taken away a glimmer of community. You don’t have to enter the military when you graduate, but those who do have done well. One of my former first grade students is actually the recruiter for the marines. It’s amazing to see this little boy I loved grow into a man who changes other students lives.
God bless them.
Every other community during a pandemic voted yes. This vote was based for many on sending a message to adults, and the children are the ones left with the bottle of dreams on paper being tossed into the waves.
Thank God for the helpers. The ones who always work to bring the positives out.
Those are my people.
Today we may see my school district’s plan they worked on all summer that they had to send to Cuomo, all while doing a budget revote and a transition in administration with community uproar. Talk about being in the brink. God bless everyone who worked on this plan… and knowing that no matter what…No one will be happy. The only way people will be happy is if the virus disappears and we go back to how it was. That won’t happen anytime soon. And no matter what the district releases, Cuomo has to approve and then can still close us down. I’ve said we are starting before Labor Day, when people gather and celebrate. I wouldn’t be surprised if he closes school and goes virtual for two weeks to start as a preemptive measure due to Labor Day parties and travel.
It’s all so much.
We are all on the brink, arent we?
Feels like we are on a cliff, some feel like we are already falling.
After being so incredibly sick the past three months, isolated, feeling like a crazy person keeping my kids isolated, having multiple doctors and residents on rounds looking at me like I was on my death bed, working harder than I ever had in all my years as a teacher even while in the hospital on the so called death bed…
Back from the brink.
You know how?
God put people in my life who BELIEVED in me.
I am in no way saying that the others before me who didn’t make it didn’t have the same.
I dont know why they didn’t make it.
But maybe because I did…
Insurance companies won’t tell patients that a drug that costs $1600 a month that their doctor said is their last chance and to pay whatever it takes… maybe they will cover it.
And others will come back from the brink.
Our district is on the brink.
But maybe the ones who work with compassion, civility, kindness, empathy, love… maybe we will begin to drown out other voices and show action is louder than words, and pull our district and students from the brink.
So no matter what comes our way, know we can always find a way out of impossible situations.
Come back from the brink…
In Jesus’s name, amen.