There were several times yesterday I thought I was dying. Then there were many times I thought this was how it would be at the end.
I told rob how much I loved him, and to let the kids know.
That’s how scary yesterday was.
And it happened so fast.
I went to the faculty meeting and had some pain. I taught in the morning, and handed out fourteen breakfasts, dealt with two cereal spills, checked everyone in, did several activities, and as the morning wore on, the pain got worse, then radiated to my shoulder.
I thought I was having a heart attack, as all of the chemo for the past three years can hurt your heart…literally and figuratively.
My TA took the kids to lunch and I went to my nurse. My blood pressure was a little high which signaled pain. We made the decision to have me go home.
I called rob and he said he would meet me home, then called my mom and asked her to be in charge of the kids. By this time I was gasping for air. I called my oncologist and we both decided I couldn’t make it to stony brook, and whatever tests would be run she could discuss over the phone. We discussed the radiation issue from cat scans and X-rays, but she said I had to deal with this immediately. She told me about concern for pulmonary embolism and exactly what to say when I got to the hospital.
Rob drove me there and we got right in. Here is where Jesus was with me.
Rob wouldn’t let me out of his sight as I gasped for air and cried and thought I was dying. His truck was parked right in front of the ER door. I kept worrying about it and suddenly my dad showed up and took his keys to move the car right as security showed up and my nurse wouldn’t let them in because he knew rob wouldn’t leave me to move the car.
Then my friend Mary Maki showed up and as I gasped for air in quick breaths and was crying in pain, she and rob stood over me and held my hands.
Then I was registered by a woman who worked in my building and I’ve known her for years. Friendly faces, even when you are at your worst, are comforting.
I remember crying and telling rob I’m not ready to die.
They took the chest x Ray in the room, then wheeled me for a sonogram. I saw the liver, and it still has tumors all over it.
My dad stayed nearby, holding my hand along with Mary and rob, or making sure rob was ok.
Rob was a rock.
Then the cat scan, and discussions of the possibilities and they all sucked. The doctor even said none of them were good. The pulmonary embolism could be fatal and also if not, take a long time to clear up. The gallbladder could mean surgery. The liver would mean the cancer got worse.
There was no door number four.
I prayed and prayed for the least worst outcome and didn’t even know what it would
be. We decided to put it out there so everyone could pray.
The nurses found a good vein on the second try and one of them is the aunt of a student in my school. Another angel.
My brother in law Jake showed up and hugged me for my sister as she is away for training. My dad said my brothers went to be with my mom so she wasn’t alone. We were both emotional and she knew how serious it was. The doctor came in and said it was not a pulmonary embolism, not the gallbladder.
Which means it’s the cancer.
Then my brother rob showed up and i cried again. It was my nephew Philipps birthday yesterday. I told rob that once again, things tend to happen around holidays and birthdays.
Rob was texting my doctor all day.
The concern is now that the 3.2 cm tumor could be pushing against the diaphragm. That could also be causing the pain to radiate to the shoulder and the shortness of breath.
My oncologist pushed and insurance gave the approval code for the PETMRI to be done tomorrow instead of Monday. So that’s going to be huge.
They decided to send me home on pain medication and discussed how palliative care may become something to look into. In my mind, palliative care is the step before hospice. That may not be the case… but my mind is my mind.
I came home and my parents brought my kids home. They are concerned as well. I saw Quinn off to Boy Scouts, and rested with my mom on the couch . I thanked God that the day ended up with me at home.
Then got another email from someone questioning if I felt Christianity has let me down along with other things.
So here’s something for all the stalkers out there.
Christianity has not let me down.
Jesus has not let me down.
Jesus was with me all day yesterday in my heart, his name on my lips over and over as they kept trying to find a vein, and as I was being told it could be fatal.
I’m not going to be saved by my actions.
I’m saved by my heart.
My relationship with Jesus is mine and mine alone. I only share part of my journey with Him. So to any of the stalkers who keep saying I’m straying and risking getting into heaven… don’t worry.
I’m going to heaven and Jesus will be there to hold me when I do… and hopefully it’s years and years away.
A friend messaged me that she had a similar experience, and after the next chemo the pain went away. So that’s my prayer.
Quinn came home from Boy Scouts and helped me off the couch with rob. Quinn kept hugging me and telling me how much he loves me and I’m the best mom ever.
I hate he and the girls saw me like this… and the thought of them seeing me worse scares the crap out of me.
That’s why I keep banging the gong how stage four needs more. One day your fine, and in hours suddenly you’re not. I’ve had friends go downhill and die so quickly. That can’t be my story. In October, don’t buy pink crap to support breast cancer. Support metavivor, where research for stage four is where their money goes. Or north fork breast health coalition which offers support for women going through treatments.
So please pray for me.
Also please pray for my friend eileen and her daughter Johanna. We seem to go through storms at the same time.
May the pain go away. May I go back to the live I’ve been thriving in. May the miracle happen and the cancer be taken away.
In Jesus’s name, amen.